Ryan is like all two-year-old boys, he loves, laughs, plays, destroys things and can be mischievous. Ryan has a great smile, and when he laughs it is infectious. He has no clue he is living with a condition that could end his life without warning.
We are a family deeply concerned with the welfare and life of our little boy Ryan. We are fighters so we can’t sit on the sidelines and wait for something to happen. We had to get in the fight. We are determined to help find a cure, a cure is the only way to end the suffering of the families dealing with vascular Ehlers-Danlos Syndrome.
Our organization is run by family, friends, and volunteers. We are not paid for our time. Our goal is simple: end the suffering by finding a cure. Too many families have been devastated by this awful syndrome know as vEDS. We intend on being there when the cure is developed!