What is vascular Ehlers-Danlos syndrome?
vEDS is one of 13 classifications of a certain type of connective tissue disorder. vEDS use the rarest and most severe of all of the types of Ehlers-Danlos disorders. vEDS is either inherited or a mutation in a gene. Ryan’s condition was not inherited. The only way to diagnose vEDS is with genetic testing.
Sherene Shalhub, M.D., M.P.H
Sherene Shalhub, M.D., M.P.H., is a board-certified vascular surgeon at the Vascular and Endovascular Surgery Clinic at UW Medical Center. Since joining UW Medicine in 2013, she has received a PRAISE Award and was named a rising star by the Institute of Translational Health Sciences.
Dr. Shalhub provides personalized care to patients suffering from rare vascular conditions. She believes in creating active partnerships with her patients to achieve the best possible outcomes.
Dr. Shalhub earned her M.D. and M.P.H. at the University of South Florida. Her clinical interests include treating aortic and peripheral arterial aneurysms and dissections in patients with genetically triggered vascular diseases.
Dr. Shalhub’s research interests include the genetic basis of aortic and arterial aneurysms and dissections, elucidating the mechanism of rapid aneurysmal degeneration of the descending thoracic aorta post aortic dissection and vascular trauma management.
Dr. Byers is a UW professor of medicine and pathology, adjunct professor of genome sciences and adjunct professor of oral biology.
Dr. Byers’ research has the objective of understanding the molecular pathogenesis of inherited disorders of connective tissue. His research has focused on disorders that affect collagen genes and the enzymes involved in the post-translational modification of collagens.
Dr. Morris specializes in cardiovascular imaging of the fetus, child, and young adult. She is part of the fetal cardiology team that provides comprehensive care to families, including diagnosis, counseling, and management, from the time a fetal anomaly is suspected. She is a member of the fetal cardiac intervention team that offers in-utero procedures for specific heart conditions to try to optimize outcomes in major cardiac anomalies, especially procedures for hypoplastic left heart syndrome and related disorders.