Vascular Ehlers Danlos Syndrome (vEDS) Collaborative survey

As many of you are aware, Ryan’s Challenge has been collaborating with Dr. Sherene Shalhub and Dr. Peter Byers of the University of Washington on the Vascular Ehlers-Danlos Collaborative via the Patient-Centered Outcomes Research Institute (PCORI) research grant. This is a $50,000 grant aimed at bringing key members of the medical community (physicians and researchers) together with active members of …

Support Ryan’s Challenge when you Shop on Amazon!

Amazon Smile. You shop. Amazon gives. Shop for everyone on your gift list this holiday at and Amazon will donate 0.5% of the price of your eligible AmazonSmile purchases to Ryan’s Challenge, Inc. Start Shopping Now!

Birthday Bash Virtual 5K Fun Dash

Saturday, November 18, 2017 at The Physicians Centre in Bryan, TX. Join us for a Birthday Bash Virtual 5K Fun Dash! To Register, text “DashBash” to 41444, or Register Online! Early Entry Fee is $25. Race Day Entry is $30. All proceeds go toward Awareness of Vascular Ehlers-Danlos Syndrome.

Ryan’s Challenge featured on KAGS-TV

College Station family aims to find cure for son’s rare condition – feature story on KAGS-TV VIEW VIDEO Often a journey is marked not by time, but the fear of delving into the unknown. A local family’s difficult journey into the mystery surrounding their son’s rare condition was marked by challenges and uncertainty. However, they faced those obstacles with an …

vEDS conference in England

Wish us safe travels as we head to England for a conference on vEDS on May 4, 2017. We will be excited to share what we learn with you, so keep checking back with us.

Raising awareness at Sam Houston State University

We had a wonderful day raising awareness at Sam Houston State University. We met some wonderful students that want to help…. We want to send a special thanks to everyone at SHSU. The day after I decided to start Ryan’s Challenge they stepped up to the plate for our cause. Sam Houston gave us an intern, housing for her and …