#Selfies4Ryan

#Selfies4Ryan is our National vEDS Awareness Campaign to set the Guinness World record for “Most Selfies taken with Media Personalities.” Ryan’s Selfie Adventure has already taken him to KBTX, KAGS, The Eagle and Bryan Broadcasting where he has taken over 30 selfies with news reporters and radio broadcasters. Ryan will be travelling Texas in the upcoming months to take even …

We need your help!!!

We are going to make a decision in the next month and need your help with it!  If you or a loved one has vEDS and would be interested in attending a International vEDS Conference, please fill out this survey.  Thank you.  https://www.surveymonkey.com/r/VW53SB7

#WearRed4vEDS Day on Friday, May 18th

On May 18th, 2018, join us in raising awareness and #WearRed4vEDS with us to show your support! Raising awareness can be fun and simple! Just wear a RED shirt on Friday, May 18th. Don’t forget to post a picture with our hashtag #WearRed4vEDS!

Vascular Ehlers Danlos Syndrome (vEDS) Collaborative survey

As many of you are aware, Ryan’s Challenge has been collaborating with Dr. Sherene Shalhub and Dr. Peter Byers of the University of Washington on the Vascular Ehlers-Danlos Collaborative via the Patient-Centered Outcomes Research Institute (PCORI) research grant. This is a $50,000 grant aimed at bringing key members of the medical community (physicians and researchers) together with active members of …

Support Ryan’s Challenge when you Shop on Amazon!

Amazon Smile. You shop. Amazon gives. Shop for everyone on your gift list this holiday at smile.amazon.com and Amazon will donate 0.5% of the price of your eligible AmazonSmile purchases to Ryan’s Challenge, Inc. Start Shopping Now!

Ryan’s Challenge featured on KAGS-TV

College Station family aims to find cure for son’s rare condition – feature story on KAGS-TV VIEW VIDEO Often a journey is marked not by time, but the fear of delving into the unknown. A local family’s difficult journey into the mystery surrounding their son’s rare condition was marked by challenges and uncertainty. However, they faced those obstacles with an …

Raising awareness at Sam Houston State University

We had a wonderful day raising awareness at Sam Houston State University. We met some wonderful students that want to help…. We want to send a special thanks to everyone at SHSU. The day after I decided to start Ryan’s Challenge they stepped up to the plate for our cause. Sam Houston gave us an intern, housing for her and …