Grub Burger Profit Share July 13, 14, 15

The Bryan/ College Station City of Commerce will be hosting the profit share at Grub Burger on Friday, July 13th. Edward Jones will be hosting Saturday, July 14th and Ryan’s Challenge will be hosting Sunday, July 15th. Come out to Grub Burger on University Dr. on any of these days and help support raising awareness for vEDS.

Kstar 99.7 and ABC 13

At the beginning of next week we will be visiting Kstar 99.7 in Conroe for a short interview segment and more selfies! Later in the week, Houston’s ABC 13 show “Houston and you” will be doing a half hour segment on Ryan’s Challenge. We are excited to be moving into the Houston arena to spread awareness for vEDS and of …

KRBE 104.1

Ryan visited the staff of KRBE 104.1 in Houston earlier this week and Kyle Dolliver gave another famous interview. Ryan ate goldfish and played with toys while Kyle talked. The staff let Ryan sit in their ambulance turned mobile radio truck “The Beast.” We got three more selfies which takes our total up to 67!

5 More Selfies at First Friday in Downtown Bryan

While Ryan and I where at First Friday in Downtown Bryan we happened across 5 media personalities Andrea Dean from Aggie 96 and 4 DJ’s from KEOS 89.1. This raises our total to 64! We are headed to Houston July 10th to add to our total!


#Selfies4Ryan is our National vEDS Awareness Campaign to set the Guinness World record for “Most Selfies taken with Media Personalities.” Ryan’s Selfie Adventure has already taken him to KBTX, KAGS, The Eagle and Bryan Broadcasting where he has taken over 30 selfies with news reporters and radio broadcasters. Ryan will be travelling Texas in the upcoming months to take even …

We need your help!!!

We are going to make a decision in the next month and need your help with it!  If you or a loved one has vEDS and would be interested in attending a International vEDS Conference, please fill out this survey.  Thank you.

#WearRed4vEDS Day on Friday, May 18th

On May 18th, 2018, join us in raising awareness and #WearRed4vEDS with us to show your support! Raising awareness can be fun and simple! Just wear a RED shirt on Friday, May 18th. Don’t forget to post a picture with our hashtag #WearRed4vEDS!